My Excercise-960x410

My Exercise

Exercise: I read that when you have Myositis you can complicate things by becoming sedentary so I always try to do some kind of exercise. I have to ease into an exercise program, baby steps, otherwise I’ll pay for it later with fatigue. Learning to take it slow is very hard for me. I have the personality that can overdo it. When I was younger I would mountain bike, rock climb and go to the gym in the same day… [...]

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June, 2014 May, 2014 May was all about allergies for me! I’m allergic to birch, oak and maple and I’m surrounded by birch, oak and maples!!! May is such an amazing time in Connecticut however, if you suffer from allergies it can be a very miserable time of the year. Mother’s day weekend is when it all starts. That’s the weekend when all the leaves pop out and the green pollen starts flying in the air. It’s so bad my [...]

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I’m back!!! I think I just needed a break. I hope you enjoy the new site. I’ll do my best to catch you up on what’s been going on since February 2013.  My health continues to be great, no hospital visits, no really bad days, no pain… it’s kind of amazing how good I feel. I’m still taking Rituxan every three months and I really think that’s what’s working. February not only did my good friend Cheryl pass away, we [...]

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November 2012: Hurricane Sandy didn’t really affect me that much. I was in Wisconsin at a press check with a client. I flew out on Sunday. I think I was on one of the last flight out of LaGuardia on Sunday evening. On Monday morning we sat in the visitor room at the printers watching TV. We watched it all unfold like the rest of the country. I called my husband every few hours to see if any trees came [...]

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Fall/Winter: 2011 I have great news, my bald spot has started to grow hair! In August 2010 I started to lose my hair to alopecia. It actually got so bad I went in for a wig fitting. I’m happy to say as of today I don’t need it. I can’t pinpoint exactly what triggered my hair growth but I can tell you all the things I tried. My friend and yogi Debbie, also teaches Ayurvedic, had contacted a guru in [...]

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December: 2010 Early December I had business out in California so I was able to spend the weekend with my brothers and their families. It was perfect timing. My brother Don and his wife had a Christmas party so I got to see a lot of people I haven’t seen in a very long time. It was also my little brother Randy’s birthday, he turned thirty nine. It’s hard to believe how grown up they are. It’s hard for me [...]

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December: 2009 I went in for my Rituxan treatment and everything went smoothly. I take 700mgs of Rituxan and it takes about two – three hours. I’ve been going every three months. We’re going to try every 16 weeks next time. We’ll see if I can spread out the treatments without falling apart. I’m still off Prednisone and all other drugs. It’s really nice. I went in for a breathing test and my lungs, or I should say the muscles [...]

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