My Excercise-960x410

My Exercise

Exercise: I read that when you have Myositis you can complicate things by becoming sedentary so I always try to do some kind of exercise. I have to ease into an exercise program, baby steps, otherwise I’ll pay for it later with fatigue. Learning to take it slow is very hard for me. I have the personality that can overdo it. When I was younger I would mountain bike, rock climb and go to the gym in the same day… […]

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July, 2014 I went in for my Rituxan treatment and for the fist time in a long time my CPKs were above normal… they were 271. That explains why I have been feeling a little like the tin man… all stiff and achy. I’ve been taking a tramadol every morning just to get though the day. I only need one pill a day. My next Rituxan treatment is in October. If my CPKs are not normal by then, then I’ll […]

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I’m back!!! I think I just needed a break. I hope you enjoy the new site. I’ll do my best to catch you up on what’s been going on since February 2013.  My health continues to be great, no hospital visits, no really bad days, no pain… it’s kind of amazing how good I feel. I’m still taking Rituxan every three months and I really think that’s what’s working. February not only did my good friend Cheryl pass away, we […]

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November 2012: Hurricane Sandy didn’t really affect me that much. I was in Wisconsin at a press check with a client. I flew out on Sunday. I think I was on one of the last flight out of LaGuardia on Sunday evening. On Monday morning we sat in the visitor room at the printers watching TV. We watched it all unfold like the rest of the country. I called my husband every few hours to see if any trees came […]

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Fall/Winter: 2011 I have great news, my bald spot has started to grow hair! In August 2010 I started to lose my hair to alopecia. It actually got so bad I went in for a wig fitting. I’m happy to say as of today I don’t need it. I can’t pinpoint exactly what triggered my hair growth but I can tell you all the things I tried. My friend and yogi Debbie, also teaches Ayurvedic, had contacted a guru in […]

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December: 2010 Early December I had business out in California so I was able to spend the weekend with my brothers and their families. It was perfect timing. My brother Don and his wife had a Christmas party so I got to see a lot of people I haven’t seen in a very long time. It was also my little brother Randy’s birthday, he turned thirty nine. It’s hard to believe how grown up they are. It’s hard for me […]

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December: 2009 I went in for my Rituxan treatment and everything went smoothly. I take 700mgs of Rituxan and it takes about two – three hours. I’ve been going every three months. We’re going to try every 16 weeks next time. We’ll see if I can spread out the treatments without falling apart. I’m still off Prednisone and all other drugs. It’s really nice. I went in for a breathing test and my lungs, or I should say the muscles […]

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