Febuary: This winter has been brutal, freezing temperatures, one snow storm after another, ice everywhere. The winter has been very cold. I usually don’t do very well in cold weather because of my Raynaud’s. Raynaud’s syndrome or “Secondary Raynaud’s” occurs secondary to a wide variety of conditions, Polymyositis being one of them. Considering all the bad weather my symptoms have not been bad at all. No white finders or toes. I’m not sure if it’s because I’m doing a better [...]

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I’m back!!! I think I just needed a break. I hope you enjoy the new site. I’ll do my best to catch you up on what’s been going on since February 2013.  My health continues to be great, no hospital visits, no really bad days, no pain… it’s kind of amazing how good I feel. I’m still taking Rituxan every three months and I really think that’s what’s working. February not only did my good friend Cheryl pass away, we [...]

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November 2012: Hurricane Sandy didn’t really affect me that much. I was in Wisconsin at a press check with a client. I flew out on Sunday. I think I was on one of the last flight out of LaGuardia on Sunday evening. On Monday morning we sat in the visitor room at the printers watching TV. We watched it all unfold like the rest of the country. I called my husband every few hours to see if any trees came [...]

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Fall/Winter: 2011 I have great news, my bald spot has started to grow hair! In August 2010 I started to lose my hair to alopecia. It actually got so bad I went in for a wig fitting. I’m happy to say as of today I don’t need it. I can’t pinpoint exactly what triggered my hair growth but I can tell you all the things I tried. My friend and yogi Debbie, also teaches Ayurvedic, had contacted a guru in [...]

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December: 2010 Early December I had business out in California so I was able to spend the weekend with my brothers and their families. It was perfect timing. My brother Don and his wife had a Christmas party so I got to see a lot of people I haven’t seen in a very long time. It was also my little brother Randy’s birthday, he turned thirty nine. It’s hard to believe how grown up they are. It’s hard for me [...]

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December: 2009 I went in for my Rituxan treatment and everything went smoothly. I take 700mgs of Rituxan and it takes about two – three hours. I’ve been going every three months. We’re going to try every 16 weeks next time. We’ll see if I can spread out the treatments without falling apart. I’m still off Prednisone and all other drugs. It’s really nice. I went in for a breathing test and my lungs, or I should say the muscles [...]

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