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Polymyositis

Pulmonary Fibrosis

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Polymyositis associated with lung disease

My Pulmonary Fibrosis is secondary to Polymyositis. It's not the same as Idiopathic Pulmonary Fibrosis; meaning if I can control the Polymyositis with luck the pulmonary fibrosis could slow down or even stop before it does too much damage or before I need a lung transplant. Idiopathic means cause unknown so it's more aggressive.

There are a variety of lung abnormalities that can occur in patients with polymyositis. I’ve listed some of some of them:

  • Scarring of the lung tissue: Pulmonary fibrosis or interstitial lung disease.
  • Inflammation of the lining around the lungs (pleuritis).
  • Inflammation of the blood vessels supplying the lungs. (vasculitis).
  • Infections (pneumonia).

Treatment involves strong medications directed toward stopping the inflammation and suppressing the immune system. Basically the same treatment that you’re on if you have Polymyositis.

Prednisone and Imuran are the two drugs I’m on.

Methotrexate, which is used to treat polymyositis, can actually cause pulmonary fibrosis. (Although this is very uncommon). Lucky me! If I had to do it all over I wouldn’t take Methotrexate.

 

 

 

 

Disclaimer: I am not a medical professional nor do I have any medical training.
The information contained within this web site is based on my personal experience and my research only. 
I do not recommend nor do I endorse any of the treatments, medicines or products listed within the contents of this web site.